SHAK stands for Spina Bifida and Hydrocephalus Association of Kenya; it was begun by a parent who needed facts about her daughter who was born with these conditions. Her reasons to find out more was simply because she could not bear the wrong accusations and the cruel judgement the society exposed her too. She went through this sad ordeal simply because she got pregnant while still in school.
The Spina Bifida and Hydrocephalus Association of Kenya – National, is registered with the government as a society under the societies act of the Kenyan law. It was formed as an important tool to unite all the existing SHAK chapters. It is a platform to speak to the society at large on issues concerning awareness, advocacy and sensitization in one voice. It is also an avenue for resource mobilization, capacity building and networking for the mutual benefit of the existing and upcoming chapters. SHAK National’s secretariat sits at Kijabe.